We have been the parents of children diagnosed with PANS and PANDAS for several years now. We are putting together a list of resources for friends, family, and unfortunately, others who may be starting out on this horrific journey. This isn’t everything – its just our way of trying to keep the information straight while sharing it with others.
This list is just the beginning, so please feel free to comment with links or information that you think may be useful.
And we can’t express this sincerely enough, we hope that you never need any of this information. But if you do, we hope that this helps.