Welcome

We have been the parents of children diagnosed with PANS and PANDAS for several years now.  We are putting together a list of resources for friends, family, and unfortunately, others who may be starting out on this horrific journey.  This isn’t everything – its just our way of trying to keep the information straight while sharing it with others.

This list is just the beginning, so please feel free to comment with links or information that you think may be useful.

And we can’t express this sincerely enough, we hope that you never need any of this information.  But if you do, we hope that this helps.

15 thoughts on “Welcome

    1. This is a marvelous start. PANDAS struck our family 25 years ago, pre-internet. We got lucky and our son got the right treatment. He’s now working as a nuclear engineer, but still bears the scars of years lost to illness. May the Force be with you!

      1. Hello. I need to find out more about you n your son. My daughter had pandas at age 8/9. She is now 15 I feel she still has it as she goes In And out of horrible events of emotions which I belyare flare ups please tell me did he have this will a teenager what did you do what med how long did it last and any other info. Iin Desperate need of help. Thank you

      2. Wow Mary, I can relate. We also had pandas/pans to deal with pre internet. 20 years ago my son started his battle. Just graduated with a degree in chemical engineering. Resources like this are so advantageous. Thank you!

  1. Thank you so much for this site I have 2 dealing with PANS for over 2 yrs now and while in treatment with Biaxin for micro plasma my younger one gets Streptococcus and added a whole new ballgame thrown right at us PLEASE REMEMBER FOR ALL THAT ARE ON ANTIBIOTICS STAY OUT OF THE SUN ☀️ CAN FRY THE BODY WORSENED BEHAVIOR

    1. Thank you, Amy. I am glad to hear that you are having success. I think that is something that someone stuck in the quagmire of PANS PANDAS needs to hear.

  2. Thank you for starting this! I would like to leave another book suggestion, if I may. Medical Medium by Anthony William. Doesn’t go into Pandas specifically however it discusses how viral load, especially Epstein- Barr, is the root of many diseases. This helped me understand how infections work and gave me lots of suggestions on how to use foods to heal. I look forward to visiting this website!

  3. So happy to find out about this website… it is sorely needed (and looks cool too!) I am a PANDAS mom, 5 years in (son 8yo). Wondering what, if any, help y’all need with literature? Do you have easy access to academic journals? I do! If there are ever any articles you need to source, or just need somebody to keep track of new PANDAS/PANS-related research (I can set up notifications), please let me help! (I’m in clinical research and work in a university medical center). I would love to do what I can to support what you’re doing…

    1. Hi Carol,

      Any help or suggestions would be greatly appreciated. I don’t know if we can post the actual articles on the blog, but links and PUBMED references would work – unless you have other suggestions.
      Feel free to post links here, or email me, gene@biologyclassroom.com, with ay ideas or suggestions.

      And thank you for appreciating what we have done so far. It has been cathartic for us to work on this, but it is amazing to hear that someone else found it relevant or useful.

      Take care.

      Gene

Leave a Reply

Your email address will not be published. Required fields are marked *